Hair

One of the questions Rachel asked Dr. Cheshier was how much of her hair would have to be cut.

Same smile AND same hair
Same smile AND same hair

Her hair. Just so you know, Rachel’s relationship with her hair is not about vanity. Outside of getting her bangs cut a couple of times, she has never had it cut. Ever. Her hair represents the constancy of her life.

So how does a girl with a positive outlook on life react to the prospect of losing her hair? By finding a model with an awesome half-shaved look! I don’t know if she will actually do it, but the official plan is for this to be Rachel’s post-surgery hair style.

Another MRI

Rachel celebrated the end of 7th grade with another MRI, and another visit with her neurosurgeon Dr. Cheshier. This time he didn’t bring his baby docs, and it was a very calm visit.

As expected, the displosion had NOT grown since last March. He talked to us more about the surgery, and we had some questions ready for him.

He also referred us to his colleague Dr. Porter, a neurologist at Packard. He explained that it was no slight at all to Dr. Cheyette, whom we had been working with during the year, but just that since they worked together at Packard they would be able to coordinate her treatment much better. We set up an appointment with her for July.

The Seizure Posse

Rachel became a teenager at the end of 7th grade. For her party we wanted to give a huge thank-you to the “Seizure Posse”: a group of friends who helped her through a very difficult year. These wonderful boys and girls learned to recognize her seizures immediately, would keep her safe while she was having them, and comfort her as she returned to consciousness. Is there a greater gift a child could give a friend’s parents?

We rented two poolside rooms in the Dream Inn. The kids started the day going on rides at the Boardwalk. Then it was fun and games in the pool, followed by presents (and silly string) in the rooms.

IMG_0839